Healthcare Information for All
Some of you will know that Children for Health is an active member of a very important organisation, the Health Information For All Forum. We often recruit medial and health experts to help us check and suggest changes to our messages. This recent article in the Lancet sets out the case for top quality healthcare information for all. We have also published the text of the article below.
The World Medical Association (WMA) has unanimously approved a statement on healthcare information for all, proposed by the British Medical Association.1 The statement notes that lack of access to timely, current, evidence based healthcare information continues to be a major contributor to morbidity and mortality, especially in low and middle income countries, and calls on doctors worldwide to support initiatives to improve access for health professionals, patients, and the public.
The BMJ hosted a conference on this issue in 19942 and cofounded Hinari in 2001, a partnership between publishers and the World Health Organization to improve the availability of e-journals and e-books in low and middle income countries.3
In 2004 we coauthored a paper in the Lancet describing the global healthcare information system and its interdependent parts.4 We called for a global campaign to support communication, understanding, and advocacy among all stakeholders. These include researchers, journal publishers, systematic reviewers, guideline developers, publishers of secondary materials (from textbooks to radio shows), those who guide and provide access (from search engines to librarians), and all who share the vision of a world where everyone has access to the information they need to protect their own and others’ health. Healthcare Information For All (HIFA) now has 20 000 members in 180 countries, interacting on six discussion forums in four languages and working closely with WHO, which states its “quintessential function is to ensure access to authoritative and strategic information on matters that affect people’s health.”5
Over half the world’s population can now access the internet, and mobile phones are becoming ubiquitous. But as connectivity increases, so too does vulnerability to misinformation—on all topics from Ebola virus disease (belief that it is not real contributing to killing of Ebola workers), to vaccination (MMR and vaccine hesitancy, conspiracy theories, and killing of polio vaccine workers), to family planning (countless myths about pregnancy and contraception), and most recently to coronavirus (belief that nasal rinsing with salt water will prevent infection). Health literacy is more important than ever—the capacity to obtain, process, and understand the healthcare information needed to make appropriate health decisions.6 Equally, providers of information should ensure their content meets the diverse literacy and language needs of users.
Open access, open data, increased rigour in guideline development, and evidence informed policy and practice are rapidly changing the “upstream” components of the global healthcare information system, but the reality on the front lines of healthcare has changed relatively little. Thousands of children and adults continue to die needlessly every day because of failure to provide life saving interventions. Such interventions are often available locally but are not provided because of lack of healthcare information, resulting in indecision, delays, misdiagnosis, or incorrect treatment at all levels, from the home to the facility.
Hundreds of children die from diarrhoea every day in India alone, and almost all of these deaths are avoidable with simple rehydration. Yet, a recent health survey in India found that 57% of children with diarrhoea in the previous two weeks had been given less to drink than usual and 5% had been given nothing to drink at all.7 If an affected child reaches a health worker, they may inappropriately be given antibiotics rather than oral rehydration.
A similar picture is seen in other countries and across every area of health and disease. This is not the fault of care givers. Every parent and health worker wants to provide the best possible care, but they are disempowered by lack of access to reliable healthcare information. This is compounded by commercial interests and deliberate misinformation, leading inevitably to patient harm, waste of resources, and antimicrobial resistance. WHO noted in 2011 that “Globally, most prescribers receive most of their prescribing information from the pharmaceutical industry and in many countries this is the only information they receive.”8 There is no evidence that this has changed.
Access to healthcare information is fundamental for achieving the health targets in the sustainable development goals: universal health coverage and health for all. Progress has been limited by a failure of political and financial support. This is why the new WMA statement is so important. Its seven recommendations provide the beginning of a framework for collective action (box).World Medical Association recommendations.
Call to action
Action is now needed to take these recommendations forward. HIFA plans to establish a multidisciplinary working group to assess, act, and monitor progress on each recommendation. The group will include representatives from WMA, the BMA and other national medical associations, WHO, and other providers and users of healthcare information.
We encourage everyone with an interest in the availability and use of healthcare information to visit the HIFA website (www.hifa.org), join the HIFA discussion forum (www.hifa.org/joinhifa), and contact HIFA at firstname.lastname@example.org. Together, we can stop people dying because of lack of healthcare information.
The WMA and its constituent members on behalf of their physician members, will support and commit to the following actions:
Promote initiatives to improve access to timely, current, evidence based healthcare information for health professionals, patients, and the public to support appropriate decision making, lifestyle changes, care seeking behaviour, and improved quality of care
Promote standards of good practice and ethics to be met by information providers, guaranteeing reliable and quality information that is produced with the participation of physicians, other health professionals, and patient representatives
Support research to identify enablers and barriers to the availability of healthcare information, including how to improve the production and dissemination of evidence based information for the public, patients, and health professionals and measures to increase health literacy and the ability to find and interpret such information
Ensure that health professionals have access to evidence based information on diagnosis and treatment of diseases, including unbiased information on medicines. Particular attention should be paid to those working in primary care in low and middle income countries
Combat myths and misinformation around healthcare through validated scientific and clinical evidence and by urging the media to report responsibly on health matters
Urge governments to recognise their moral obligation to take measures to improve the availability and use of evidence based healthcare information
- Urge governments to provide the political and financial support needed for WHO’s function to ensure access to authoritative and strategic information on matters that affect people’s health, based on the WHO general programme of work 2019-23